May's Sponsor: Brenna Helen Marie
I was so touched by the story and life of this baby girl, and I know you all will be too.
This is the Westlake family:
Brenna was born with a very rare skin condition.
Her mom tells us about it:
"Our daughter, Brenna Helen Marie, was born on December 19 with a rare skin condition called Harlequin Ichthyosis. Brenna's skin lacks a certain protein which helps it form correctly, and instead it was formed as thick, white scales with deep ridges. She spent almost 6 weeks in the NICU at St. John's Hospital in Springfield, the majority of which was in a warm and moist environment as she "shed" the thick, tight scales of skin she was born with. She has beat one very aggressive blood infection, staph infection, undergone eye surgery at three weeks, and has battled many of the odds against her. Brenna is now home with her family, where she adheres to a strict skin care regimen that includes a long daily bath - sometimes with bleach to ward off infection - and treatments with Aquaphor every 3-4 hours to help her skin stay moist and hydrated. You can read more about Brenna's story at blessedbybrenna.blogspot.com"
We hope to be of some help to this courageous family. If you have any words of comfort or inspiration please feel free to leave them in the comments section of this post.
Please use coupon code "Brenna" in our etsy shop to receive free shipping on your next order and to help Brenna! We will be donating $5 from each order placed in the month of May to the Westlake family.
And please, if you know of anyone that could benefit from our modest contribution, please contact us at email@example.com. We would love to help!
Please leave a comment of encouragement for this family in our comments section. Baby Brenna is just 4 months old and has a long journey ahead of her.